Epilepsy Research Institute UK Sudden Unexpected Death in Epilepsy (SUDEP) workshop: Identifying the pre-clinical and clinical priorities for SUDEP research.

Pickard H., Ashby S., Sibree D., Elliott M., Bhandare A., Wykes RC., Sen A., Epilepsy Research Institute SUDEP Working Group None.

The Epilepsy Research Institute's Mortality, Morbidity and Risk Theme workshop on Sudden Unexpected Death in Epilepsy (SUDEP) brought together a diverse group of stakeholders, including basic science researchers, clinicians and clinical researchers, charity partners, bereaved individuals and people with epilepsy to identify important gaps in pre-clinical and clinical SUDEP research. Collectively, the SUDEP workshop highlighted recommendations for future research to address several identified gaps and the need to develop infrastructures that utilise data-driven approaches to reduce SUDEP risk. National and global cross-institution collaborations will be fundamental in driving these research efforts forward.

DOI

10.1016/j.yebeh.2025.110473

Type

Journal article

Journal

Epilepsy Behav

Publication Date

22/05/2025

Volume

171

Keywords

Epilepsy, Mortality, Research gaps, Risk, Seizure

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